Headlines

NICE - Consultation on draft guideline - December 2020

Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management. Consultation on draft guideline – deadline for comments 5pm on 22/12/20 email: cfs@nice.org.uk

We would like to hear your views on the draft recommendations presented in the guideline, and any comments you may have on the rationale and impact sections in the guideline and the evidence presented in the evidence reviews documents. We would also welcome views on the Equality Impact Assessment. In addition to your comments on our guideline documents, we would like to hear your views...

NEW Statement on long COVID and ME - December 2020

Statement on long COVID and ME/CFS by the International Alliance for Myalgic Encephalomyelitis, December 2020. IAFME is a formal collaboration between national organizations representing patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

SARS-CoV-2 (COVID-19) continues to affect millions of people globally. While some people recover, other people have a delayed recovery...

ME/CFS Biomedical Partnership to apply for funding

Led by biomedical researchers and patient representatives, including Action for M.E. Chief Executive Sonya Chowdhury, a newly established group called the ME/CFS Biomedical Partnership has announced that it will apply for research funding from the Medical Research Council (MRC) and the National Institute for Health Research (NIHR).

Email from Clare Ogden November 2019

Email from Clare Ogden, Head of Communications and Engagement, Action for M.E. 07-11-19. Includes statements from the UK CFS/ME Research Collaborative (CMRC) and CureME Biobank alongside an FAQ document.

ME/CFS biomedical partnership

The ME/CFS Biomedical Partnership: Genetics and Biomarkers Genome-wide association study: questions & answers.